dementia; cognitive ageing; user involvement; user engagement; ethics
Abstract :
[en] On 19 and 20 September 2019, the first "Dementia Research Forum" took place on the Belval campus of the University of Luxembourg. People living with dementia were invited to the university to discuss the research questions of the ERC-CRISP project and to advise the researchers on the dissemination of the research results. The idea of giving people affected by dementia a voice in research projects is already being successfully implemented in other countries such as the UK. The report presents some information on the research project for the general public. After that, the contributions of the participants are summarised.
Research center :
- Integrative Research Unit: Social and Individual Development (INSIDE) > PEARL Institute for Research on Socio-Economic Inequality (IRSEI)
Disciplines :
Sociology & social sciences Social & behavioral sciences, psychology: Multidisciplinary, general & others
Author, co-author :
Leist, Anja ; University of Luxembourg > Faculty of Language and Literature, Humanities, Arts and Education (FLSHASE) > Integrative Research Unit: Social and Individual Development (INSIDE)
Language :
English
Title :
EN/FR/DE Bericht über die "Demenzforschungstage" 2019. Einbezug von Betroffenen in die Forschung zu kognitivem Altern und Demenz
Alternative titles :
[en] EN/FR/DE Report on the "Dementia Research Forum" 2019. Involvement of persons living with dementia and their caregivers in research on cognitive ageing and dementia
Publication date :
October 2019
European Projects :
H2020 - 803239 - CRISP - Cognitive Aging: From Educational Opportunities to Individual Risk Profiles
Funders :
CE - Commission Européenne [BE]
Commentary :
The report is available in English, German and French.
