Reference : Determinants of Self-Stigma in People with Parkinson's Disease: A Mixed Methods Scopi...

	Document type :	Scientific journals : Article
	Discipline(s) :	Social & behavioral sciences, psychology : Neurosciences & behavior
	Focus Areas :	Systems Biomedicine
	To cite this reference:	http://hdl.handle.net/10993/50359

Title :	Determinants of Self-Stigma in People with Parkinson's Disease: A Mixed Methods Scoping Review
Language :	English
Author, co-author :	Hanff, Anne-Marie [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > >]
	Leist, Anja [University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > Department of Social Sciences (DSOC) >]
	Fritz, Joëlle [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > >]
	Pauly, Claire [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > Translational Neuroscience >]
	Krüger, Rejko [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > Translational Neuroscience >]
	Halek, Margareta [University Witten/Herdecke > Faculty of Health, School of Nursing]
	NCER-PD, consortium [> >]
Publication date :	21-Nov-2021
Journal title :	Journal of Parkinson's Disease
Publisher :	IOS Press
Peer reviewed :	Yes (verified by ORBilu)
Audience :	International
ISSN :	1877-7171
e-ISSN :	1877-718X
Country :	Netherlands
Keywords :	[en] Parkinson’s disease ; social stigma ; social discrimination
Abstract :	[en] Background: Self-stigma in people with Parkinson's disease (PD) can substantially impact quality of life and possibilities for social participation. An integrative analysis of determinants of self-stigma has been lacking. Objective: We sought to explore which complementary insights from qualitative and quantitative studies, as well as from expert consultation, could be gained. Methods: An established mixed methods study design was employed to first conduct a mixed methods scoping review of published qualitative and quantitative literature, and then consult with experts to arrive at an exhaustive list of determinants of self-stigma after a thematic synthesis. Results: A total of 87 unique determinants of self-stigma were identified. Quantitative studies and expert consultations mainly identified personal determinants of people with self-stigma (e.g., age, anxiety, or apathy). In contrast, qualitative studies identified social situations associated with self-stigma (e.g., joint meals of people with typical PD with others). Notably, self-stigma of people with PD was found to be particularly salient in unfamiliar places, at the working place or in contact with people without PD. Across methods, cognitive impairment, tremor, and abnormal walk and unsteady gait, respectively, were associated with self-stigma. Conclusion: The mixed method study design yielded complementary insights, but also factors commonly associated with self-stigma across methods. Future prioritization exercises may gain further insights into self-stigma of people with PD. Facilitating social encounters by both addressing needs of affected people and raising knowledge and public awareness may improve quality of life in people with PD
Target :	Researchers ; Professionals ; Students ; General public
Permalink :	http://hdl.handle.net/10993/50359
DOI :	10.3233/JPD-212869
Other URL :	https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd212869
Mentions required by the publisher for OA :	Corrected Proof available
FnR project :	FnR ; FNR11264123 > Rejko Krüger > NCER-PD > Ncer-pd > 01/01/2015 > 30/11/2020 > 2015

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